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Associated Organisations

Below you will find a list of groups that we collaborate with who focus and specialise on research in the field of cancer cachexia.

European Palliative Care Research Centre (PRC)

PRC is a European research centre consisting of 18 international and 8 national collaborating centres. We work closely with this group in conducting international multicentre studies cachexia. Our key collaborators include Professor Stein Kaasa, Professor Tora Solheim and Dr Trude Balstad. 

PRC website

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Stein Kaasa

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Tora Solheim

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Trude Balstad

European Palliative and Supportive Care Group

This multidisciplinary group’s key theme is to improve the care of patients with life-limiting illness with a strong focus on cancer. Specific areas of expertise include  neuropathic pain, bone pain, breathlessness and cancer cachexia. Lead: Professor Marie Fallon

 

EPaS website

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Cancer Cachexia Society

The goal of the society is to bring an awareness of cachexia to the oncology field, so as to accelerate research to improve diagnosis and treatment strategies. The CCS also seek to perform community outreach to inform patients about this syndrome and current treatment options. This is done through useful educational resources such as hosting biennial international conferences and on line seminars, sharing the latest pre-clinical and clinical findings, and creating networking opportunities. (Richard Skipworth, Executive Committee, Barry Laird and Richard Skiworth -Chairs Clinical Trials Advisory Board)

 

CCS website

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Society for Cachexia and Wasting Disorders

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The goal of the society is to bring an awareness of cachexia to the oncology field, so as to accelerate research to improve diagnosis and treatment strategies. The CCS also seek to perform community outreach to inform patients about this syndrome and current treatment options. This is done through useful educational resources such as hosting biennial international conferences and on line seminars, sharing the latest pre-clinical and clinical findings, and creating networking opportunities. (Richard Skipworth, Executive Committee)

 

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The Society on Cachexia, Sarcopenia, and Wasting Disorders (SCWD) focuses on muscle wasting across a number of medical conditions and strives to enhance global health by advancing cutting-edge research that informs effective policies and practices for medical professionals and healthcare stakeholders. Our mission is to address the challenges of cachexia (including cancer cachexia), sarcopenia, and wasting disorders involving all stakeholders to improve the lives of patients with cachexia and sarcopenia worldwide.

Barry Laird and Richard Skipworth both serve on the board of the SCWD. 

SCWD website

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Edinburgh Cancer Informatics

The Edinburgh Cancer Informatics Programme uses methods in Data Science to implement a “rapid-learning system for cancer care”. The rapid-learning comes from the healthcare system being able to keep itself constantly informed on how it is affecting patient care through use of real world data for real world evidence generation.

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The University of Edinburgh Institute of Cancer and Genetics (IGC), the Cancer Research UK Scotland Centre (CRUK) and the Edinburgh Cancer Centre (ECC) are working together to use data and information systems in new ways for this purpose. (Peter Hall - Lead)

 

Edinburgh Cancer Informatics Website

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